
I had just gotten home from work, and was resting for a few minutes when David, my husband, called from his job to tell me that my stepdaughter Lucy had given birth to her baby a little earlier than expected. Her husband, Bob told David their baby had a few things wrong with her-a “high lip” and a few other little things.
I was so excited to see my first grandchild! The birth of every baby is a reflection of Christ’s birth. Stars brighten. Heaven opens, and hosts of angels sing God’s glory. Newborn babies remove from our eyes the scales of our daily burdens. We know for a time that God’s kingdom is here, now. Little did I know that this baby was about to change my life forever.
When we got to Lucy’s room, I sensed immediately that something was very wrong. The room was full of relatives, but no one was talking. When I asked Lucy about the baby, she said only that the baby had some birth defects. They hadn’t named the baby yet. Lucy couldn’t bring herself to go and see the baby with us.
Susan, Bob’s mother, said she would take us to see the baby in the Special Care Nursery. When we got out in the hall, Susan began crying. She told us that the baby was in very bad shape and wasn’t going to live long. Outside the nursery, Susan warned us to prepare ourselves for a shock. We had to wash our hands and put on gowns before we could enter.
When we walked into the nursery, everyone in the room stopped what they were doing and stared at us. I couldn’t imagine what was going on. A nurse led us to a small incubator. There I saw a tiny baby girl with an enormous head. She was lying on her stomach. A tiny blanket was pulled up over her.
I’d never seen such a huge head. It was a big as her whole body. Perhaps she had what I had always heard called a “water head.” She was so still.
A nurse was standing beside us, and she reached down and turned the baby over on her back. I couldn’t believe it. She didn’t look like a baby at all. Her face seemed tiny compared with the huge head that rose above and behind it. Her neck wasn’t bigger around than three widths of my thumb. (I learned later that her head was 15 ½ inches around and her whole body was only 18 ½ inches long.)
The baby’s left eye had no lid at all. Her right eye was very small and sealed closed with something that looked like a cyst. The way she looked at me with that one big eye grabbed my heart. Could she see the tears flowing from my eyes?
She had a cleft lip and palate, so her mouth and nose were one big hole. Her ears looked like they had grown on her neck.
Through my tears I searched for her hands. Oh, God! Her right hand had a misshapen ring finger, which was wrapped around a “mitten” of webbed tissue. She had no well-formed fingers and no thumb on her right hand. Her left hand had a thumb, well-formed pointer and pinky finger and two, webbed “half” fingers in between.
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